Mariah's CAPPS Story...

Today I realized that the website that Mariah's craniosynostosis story has been listed on for the last eight years changed it's website completely and deleted her story. It explains why I haven't gotten any emails for the last several months from parents who need someone to talk to about their child being diagnosed with craniosynostosis. Over the last eight and a half years it has been a life savor for me to have her story on the internet...It has helped me cope with the ups and downs and not only am I helping other parents, they help me too. Luckily I printed her story and have a copy so I don't have to retype it by memory.
In order to get her story on the blog now, I scanned the pages and each are listed below. I will try to get the whole story retyped here on the blog within the next week or two. I also uploaded all of her surgery photos and put them on a slider at the bottom of this page.
Once a page below is clicked on, you can click it again to bring it closer to read.

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